Mike Smith’s 2016 Stage 4 Lung Cancer Journey: Inspiring Hope and Awareness
Discover how Mike Smith transformed his 2016 stage 4 lung cancer diagnosis into a powerful advocacy mission, raising awareness and inspiring others with his courage and resilience.
When I was diagnosed with stage 4 EGFR-positive lung cancer in 2016, I never imagined the incredible journey that awaited me — the challenges faced, the places visited, and the inspiring people I’ve met along the way.
This diagnosis brought some of the toughest battles I’ve ever encountered.
From a collapsed lung and multiple brain metastases to a craniotomy, radiation, tumor ablation surgeries, and several lung procedures, my fight has been relentless.
I've participated in clinical trials and explored various targeted therapies tailored to my cancer type.
My advocacy work has taken me across the United States, connecting with lung cancer conferences and support groups, where I’ve formed lifelong bonds with dedicated medical professionals and fellow cancer warriors — my lung cancer family.
Recognizing Early Symptoms
In the summer of 2016, I experienced unusual breathing spasms, tightness, and chest discomfort. Although I had a history of exercise-induced asthma since 1982, this time my inhaler didn’t ease my heavy breathing.
Initially, my doctor thought it was minor and scheduled a follow-up six months later, but the symptoms worsened.
One night, sharp chest pain woke me, resembling the classic sensation of a heart attack — a heavy weight pressing down on my chest, spreading to my back and arms. Though the pain subsided, I knew medical evaluation was urgent.
Receiving the Lung Cancer Diagnosis
Switching to a new primary care physician led to a chest X-ray that revealed a suspicious mass in my right lung. Despite never having smoked, I was shocked to learn lung cancer affects about 20% of non-smokers in the U.S.
Further testing confirmed stage 4 EGFR-positive lung cancer, with a brain tumor detected near my right ear.
The news was devastating; the five-year survival rate for stage 4 lung cancer remains low, underscoring the seriousness of my condition.
Sharing this with my family was heart-wrenching, but I focused on staying strong for my wife and children, reassuring them with closeness and support.
My Treatment Path
Treatment began with targeted radiation to spinal and brain tumors, and medication with Gilotrif (afatinib).
Complications like radiation pneumonitis and brain swelling required a craniotomy, after which I was able to resume normal activities quickly.
When new symptoms appeared, including a persistent cough, I underwent further diagnostics revealing a cancer mutation, prompting a shift to clinical trial participation.
The trial brought promising tumor reduction, though new brain metastases required adjustments. I’m currently on my third targeted therapy and maintaining good health.
Building Community and Advocating for Change
Connecting with others living with lung cancer has been vital — to learn, share, mentor newly diagnosed patients, and engage in advocacy.
Through this, I’ve met passionate survivors, advocates, and healthcare experts committed to advancing lung cancer research and support.
One crucial lesson: advocating for yourself is essential because lung cancer can affect anyone, regardless of background or smoking history.
Lung Cancer Awareness and Early Detection
If you experience lung-related symptoms like chest pain or wheezing, consult your doctor promptly, especially if you have a smoking history.
Discuss lung cancer screening options such as low-dose CT scans, which improve survival by detecting cancer early.
Despite being the leading cause of cancer death in the U.S., lung cancer research remains underfunded. Participating in clinical trials and supporting awareness initiatives are key to advancing new treatments.
By joining forces, we can transform lung cancer from a terminal diagnosis into a manageable, potentially curable condition.
Mike Smith, diagnosed in 2016, continues his treatment while working full-time and advocating nationwide through organizations including the American Lung Association, Lungevity, and the International Association for the Study of Lung Cancer. He lives in Fort Mill, South Carolina, with his wife and three children.
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