29 Realities Only Those Living with MS Truly Get
Living with multiple sclerosis (MS) comes with unique challenges and moments that only those affected can truly relate to. Explore 29 insightful and relatable experiences that capture the essence of life with MS.
Managing multiple sclerosis (MS) is a serious journey, but sometimes finding humor in the experience helps lighten the load. Here are 29 realities that only someone living with MS can genuinely understand.
1. The term “MS hug” is far from romantic—it’s a tight, uncomfortable sensation that only those with MS recognize.
2. Navigating a dog park with “foot-drop” can quickly turn into a messy adventure.
3. The “Swank diet” isn’t about fancy meals—it’s a specialized nutrition plan tailored for MS.
4. Crowded, noisy places often trigger the urge to escape quickly.
5. You become an expert planner, always checking accessibility, parking, and restroom options before visiting new places.
6. Rotating injection sites is a top priority—more so than even rotating your car tires.
7. Ever wonder who actually rock climbs or windsurfs like the people in MS commercials?
8. The basket on a rollator ends up holding as much as a handbag—filled with all the essentials.
9. Your muscles might spasm the instant a needle touches your skin.
10. Sometimes, taking a shower feels more exhausting than getting dirty did.
11. You secretly wish everyone wore name tags to avoid the stress of remembering names.
12. You can tell the difference between flu-like symptoms caused by MS medication and the actual flu.
13. Forgetting where you placed your keys is one thing, but forgetting where you parked your car is another level.
14. You hope the doctor’s test of touching your nose with your finger actually serves a purpose and isn’t just for show.
15. The “retail squeeze” is real: as your walking space widens, store aisles seem to narrow.
16. Trimming toenails becomes a challenging task.
17. TV chefs should try cooking while seated to understand the struggle.
18. That mobility scooter is a vital lifeline—not a toy for others to misuse.
19. Getting a disabled parking permit is easier than finding an available disabled parking spot.
20. In games like hide and seek, you’re often the first to be found.
21. Seeing someone in orange immediately brings MS awareness to mind—not a crossing guard.
22. The closer you get to the bathroom, the more urgent the need becomes.
23. The nine-hole peg test isn’t a souvenir you can buy at a gift shop.
24. “Fun in the sun” isn’t part of your vocabulary due to heat sensitivity.
25. After countless MRIs, you can hum the familiar sounds of the machine.
26. A career as a getaway driver is off the table because of slow mobility.
27. When people stare at your cane, you joke that it’s from your tap dance class.
28. Terms like “RRMS,” “SPMS,” and “CPMS” aren’t Grandpa’s snoring noises—they’re MS types.
29. When someone says, “You look great,” you wonder if they’re complimenting you or the lasagna you brought.
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